Has anyone any experience of Polycystic Ovary Syndrome?
My sister has just been diagnosed after trying unsuccessfully for a baby for over a year. She's glad, because at least it gives her a reaosn for her weight gain, but also a bit scared...

I've reassured her by sayingthat I know people can have kids with PCOS (just look at Posh Spice...sorry, not a shining example mrs 'I'm not anorexic, it's PCOS' Beckham)because I'v read about it, but I really want to be more there for her...
Does anyone have any good website addresses?
loads of thanks

Hi there,

http://soulcysters.com/weight_loss.html

I was told i had PCOS 2 years ago they have put me on Metformin 500mg twice a day.

It's not nice really being scared but there is allot of treatment out there i have been on a site today called babycentre.co.uk and there are loads of sucess stories on there !! the main bit is to loose weight !

if there is anything i can help with or questions i will try and answer them !
xx

hi there just first got to say its nice for your sister to have you as support, cos its hard to go threw on your own. Pcos is fluid filled sacks that grow in and out of your ovaries, and if you have a period the egg that gets produced gets taken over by a fluid filled cyst and it just goes back into one of these cysts.I was diagnosed with pcos two years ago, when my partner and i first started trying for a baby. in the last 2 years i have put on 4 1/2 stone, i dont have periods, and i have really bad mood swings. People can have children as pcos can be reversed or helped my clomid and metophormin. Clomid makes eggs more dominant and gives you a better chance of concieving, metophormin can also help fetch back periods etc. Im 5ft4 and weigh 15st4, but i dont really worry about it because im helping myself i have joined weight watchers and do regular exersice. Slowly the weight is coming off, but its worth it cos for every pound i lose the closer i could be to concieving. Over the past 2 years i have gone through so many tests but nothing to worry about. Just think that every test you have the closer you are to concieving. If your sister dosn't have periods ask her to try AGNUS CASTUS its fantastic, you can get it from Holland and Barrett. it makes you have periods when taken properly. if i can help you any more please pm me. Lewise

hi, i am in a similar situation. i have pcos and we are trying for a baby. it is a horrible condition and very depressing but all that can be done is to try and come to terms with it and then be aware of what needs to be done to make the condition better. i have looked for websites myself and havent found any really good ones but all of them have information available. knowledge is power and the more your sister knows about her condition the easier it will be to overcome it. i get very depressed about everything especially the weight and excess hair, i also get broody and have ended up with three very spoilt but loveable dogs. it helps to talk to others if you can who are in the same situation. i hope i have been of help and that your sister learns to cope soon dan xxx

i have had irregular periods since the age of 14 and the doctor put me on the pill to try and regulate things when i was 17 my periods stopped altogether (even when on the pill) i was referred over to the Garnicologist department as my doctors thought i had PCOS. I was quite scared as i knew nothing about the condition. I was in for a shock when i got there as i was told that i was already pregnant. so they could not find out whether i have pcos. I have now got a two year old little boy. It has not just happened once i fell pregnant again in september but suffered an ectopic pregnancy, this is when i was finally diagnosed with PCOS. I have been put on metformin to try and make my periods regualar. I have not got any websites or anything the only advice i could give is live life and dont worry as it will happen when it happens. I am proof that PCOS woman can conceive (and im not skinny either)

Hello-
I can relate to your sister because I am 27 and just found out that I have PCOS because I am trying to get pregnant. I stopped getting my period around 16 and was experiencing acne then I was put on birth control and it all went away so no one noticed anything was wrong until my bloodpressure skyrocked at 25. I am a runner not overweight, and not hairy, so PCOS was ruled out until I was taken off birth control and still never got a period. I was put on clomid to induce ovulation. I moved from 50 mg to 100 mg and STILL haven't ovulated. Now my Dr is sure that I have PCOS and he is starting me on glucophage along with clomid. I am frustrated, but I have heard as long as you address the problem and are willing to to keep trying people with PCOS CAN get pregnant. The important thing is to seek help from a good dr. You sister can feel free to email me. Good luck

Hi
Verity is a brilliant website. I hope by now she is pregnant.

Pippa

hi,
i also have pcos,
a great web site for your sister is
www.soulcysters.net/chat/flashchat.php
i hope this will be of help,
if your sister ever wants to chat you can pass my e-mail address on to her ,
id be more than happy to hear from her

I had no idea I was PCOS till I went off the pill to start trying for a baby with my husband - and had a year of no periods! (Ok perhaps I should have gone to the Dr before a year was up but I just kept thinking it would sort itself out...) Anyway I got diagnosed, my Dr got the periods going, finally got me ovulating, eventually did a laparoscopy and finally got pregnant.... It all took time (almost another 2 years), but thats the way it sometimes goes, I guess.

Good Luck to her! Also keep in mind that PCOS often runs in families so you may also be affected to some degree (or you may not). My sister has irregular periods (although neither of us have many other symptoms) so I suspect she is as well, so I've talked to her about it. She isn't in a position to try for a baby, but at least she will be armed with a bit more info and can have a dr take a closer look then.

Good luck to your sisters journey! May it be successful.

Sorry to hear about your sister being diagnosed with PCOS, i know this must be a bad time for her.
I have got PCOS aswell, but i found out when i was 16, and at the time having a baby wasnt the most important thing in the world to me!
However im 21 now, and i'm trying for a baby, but sometimes I think it'll never happen.
I can't really offer you or your sister much because I dont know her exact situation, but I just want you to know that she isnt alone, and all the feelings and everything she's going through, i understand. If either of you want a chat - let me know!
Ashley xx

I have been diagnosed with pcos and it is a dreadfull thought i my head all the time what if i dont get to have children?
I get really scared and upset my partner has a child from a previous relationship (not planned though!) i shudlnt but i do get upset about it sometimes , dont get me wrong i love her so much but just its not mine if you know what i mean!
If anyone wants to chat with me i would love to hear from somebody in my sitiuation
Melissa
xx

i'm 17 i was diagnosed recently. all i think sbout is weather i'll be able to have children or not it's horrible. the doctor hardly explained what it was so i searched it on the internet and was really shocked
rosa xx

hi melissa

just wanted to let you know that the feelings are completely natural, i was diagnosed with PCOS at 15 and told by my very understanding doctor that i would never have children so just forget about it and get on with my life!! (lovely man!)well after advice like that you do just get on with things and at the age of 15 the last thing i was thinking about was a baby although i was on birth control just to sort the periods out.

a few boyfriends later all of which i used extra protection with aswell as taking the pill i met my current partner who i knew was the one we discussed the fact that i couldnt have children which he completely understood and we settled into a life of having fun together.... well six months down the line while still taking the pill we found out i was pregnant !!! shock to say the least but a blessing all the same our little boy dryden was born healthy and happy not too many complications again i went back on the pill and again 3 months later i was pregnant again!! another little boy blake ensued and before going on birth control again i had some tests done and they found that the pill was actually kick starting my ovulation!!

so the point really is that sometimes not worrying is the best option

amanda xx

Hello there,

I was diagnosed with PCOS in December of 2005, and I have found a wonderful site which is devoted to women suffering with PCOS it is www.verity_pcos.org.uk, there u can ask questions, read other peoples posts on the forum and it helped me get a better understanding of what PCOS is and how I can help get pregnant.

I am now starting my first cycle of a drug called Clomid, which helps PCOS suffer's ovulate. It will be a tricky and horrible time for your sister with tests and exams, but it is worth it when you get the treatment she needs.

Lisa
x

hi lisa,
i also have pcos,
i did clomid ( 6 cycles) but for me they didnt work ,
it just made me ill i hope it works for you
good luck and if you want a chat e-mail me

Ive been diagnosed with PCOS for at least 3 years or more. Ive been on a strict regimen of Glucophage and Cytomel. After about 2 years of having the Dx I started to get Bacterial Vaginosis. My general practitioner sent me to an OBGYN for this and he told me that there isnt anything they can do for them but to treat them when they come. Well in my case I get it once a month if not twice. Usually they put me on Flagel and it gives me thrush then I have to take meds for that as well, its a vicious cycle and a complete annoyance. My sex life is nonexistent because of the Bacterial vaginosis and Im frustrated.
What Im wondering is if anyone else has experienced this and what sorts of things has your Doctors done for you?

Yes I a also a PCOS sufferer. Yet to get pregnant. Most doctors offer little/limited advice on the subject there is a good book which i have serch for PCOS on the amazon website and you will find it. Hope that helps. Also if you get your weight down gentaly by diet and exercise you may begin ovulating again!
Also as your sister has tried for a year she can asked to be put on a drug called Clomid which helps you to ovulate and the sucess rate is good. I'm a product of it as my mother was on it for about eight months and got pregnant with me after 5 years of trying.

I've heard of Clomid too, it's good to know it works!

Hi!
I am 26 and I'm from Spain and have read by chance your message, as I was looking for a discussions board about POCS too. I "suffer" this problem since I was 15 (my mother had it too), and fist of all tell your sister not to worry about getting pregant, I can ensure you that she can perfectly get pregnant having POCS, it only takes longer than usual, that's all!!, my mother took almost 2 years to have me, and peculiarly with my sister and brother had no problem at all, I mean it is a question of time, some women get pregnant in some months and other a bit later. Well, it is important that she ovulates, otherwise it won't be easy. I'm taking Onagra oil in order to regulate my cycles, which are not regular at all by themselves... Onagra oil is natural and you can have in pills, it is very good as well for the health of the skin and the hair. It takes some months before you feel the effects but it is worth trying it. Ah! This also stimulates the ovulation.
For many years I've been taking pills like Diane35 and Yasmin and always made me feel very bad, that's why I geve up taking them last year and beguan taking Onagra, I feel much better in my skin. Next year my boyfriend and I will try to have a baby.
I forgot to tell you that many many girls have POCS, more than we think, it is very common nowadays, and it is not a serious problem to get pregnant, as it would sterility... it is very sad.
I hope it helps you you and your sister.

¡¡¡Besos y hasta pronto amiga!!!

I am so happy that i found this website. I have been looking for some help and you have helped me. I suffer from PCOS. It has been a depressing time for me. all the test the pills i am not a pill person. I had gain weight i was only 122 not i am 155lb in just 4 months. but that you I will look int to the Onarg oil

Thank you

hi

it does depend on how badly effected by pcos. my friend has it and was told that she would never conceive and carried on with her life as she wasn't ready for kids anyway. as she thought she couldn't conceive she never used contraception but 3 years after getting married she found out she was pregnant conceived naturally. it is possible to have children with psos. use a search engine like ask jeeves or google to find more websites. it she's worry she could be refered for fertility tests by her GP. good luck x