hello lovely ladies
im so sorry but i need to vent, as some of you know my son henry got diagnosed with autism in febuary, we also found out that parts of his brain were'nt as they should be due to him having convulsions at birth, in the last year he has come on so much, but he has just started nursery school, the nursery he attended befoe were amazing, so helpful and made sure henrys needs were met,
now dont get me wrong i understand that in a school nursery there are more children but im starting to get cross at how they are totally ignoring henry, everytime i pick him up he has a dirty nappy, he doesnt tell anyone he has pooed he doesnt realise, and believe me you can smell him as soon as you enter the room he's in, i even brought it to the teachers attention that he was begining to get sore she assured me they would put it into his routine but today they changed him at 10, but he had obviously pooed again and getting him home he was so upset saying sore sore when i tied changing him.
i went to a autism outreach progam yesterday, its a course for 8 weeks to help me understand h more, they said alot of things that made so much sense, and they did say that they had worked closely with henrys school but they seem totally oblivious when i go in, im not asking them to give henry special attention just the help he needs, he cant tell me what hes done though the day, they even wanted to get rid of his visual timetable but the autism people told them not to, im just so frustrated,
i feel they just dismiss him, giving him rules that he just doesnt understand and it breaks my heart when i leave him there not knowing that he is ok, they have the trains out every morning for him, but have said quite clearly that they will be taking them away to challenge him i have said this to the specialist people and they said it wasnt a good idea for them to do it but im just so angry i dont want to pull him out of the nursery as hes got into a routine of going everyday. sometimes hes so much hard work and im on my own with him, his dad refuses to believe there is anything wrong with him i had support workers but im now to old for help im just going round in circles and just seem some advice please

hope your all well
chloe and henry
xxx

Hi chloe

There must be a school board that you can contact regarding this nursery. Not changing his bottom is neglect and should not be happening (although I have heard this a few times from a few friends and has put me off nursery.)

Can your local council not advise you of help? Perhaps a support worker that can actually do one to one with Henry?? You get them in London hence my asking but I am not sure if he is too young.

It sounds to me like they will actually be doing more damage to his development rather than enhancing the experience for him.

Phone your local council and/or citizens advice bureau - they too might be able to help you.

Good luck and let us know how you get on

Hello

Hello, i am a nursery nurse for children with special needs and work in a specialised unit for children with autism. Have the school applied to the lea for support for Henry? it sounds like he would benefit from the one to one help. The support assistant would know henrys likes and dislikes, what sends him into melt down and how to avoid that, help Henry with his toileting needs etc. It will take the pressure of the class teacher and also be someone close to Henry that you can also make a close relationship with. As for the visual timetable dont let them take it down, that is his support to give him an understanding to the school routine. Have the school been on the teech programme that will explain to them why the timetable is so important. another idea that might help Henry is the pecs programme, it is a picture exchange programme where Henry exchanges pictures for what he needs and wants, this will give him more confidence in toileting and it is someting that any adult in the school can use. I know Henry is currently in nursery but if the school put all these programmes into place now it will help him for when he starts school. You can get help and information from the national autistic society and from snap (help with problems in education for children with special needs). Are the school planning to statement Henry, if so keep pushing them as you have a lot of legal backing once you get that statement. I could probably go on and say alot more but dont want to bombard you.

Any help you need or if you want to know anything please just message me - i feel that schools try to get away with alot of things

Hope this is of help

Jodie and Ben 5 and half months